Twizzlers, smiles, who stopped by and a special share from Grandpa

Specific prayer request of the day: Pray tonight for Julia's blood counts!

From Grandpa David:
- I received a request for prayers for this young man's battle so please include him in your prayers. Lord please this lift young man up and lay your healing hands on his body to drive out this awful cancer.

Join Jareds Journey Facebook Group

This post was very difficult for me to put into words. Today was one of the hardest days we have had since diagnosis. Jared's cancer had returned in his right lung a few weeks ago and we started chemo in hopes of shrinking the tumors. Unfortunately we received word today that the doctors do not believe that the chemo is working. Jared will have a cat scan next week to confirm but if the tumors have done what we fear, which is grow despite the chemotherapy, we are in a very tough position. Jared is not done fighting and has stated this but it comes down to the fact that Jared has received all proven therapy for Ewings so any therapy we give him at this point will be a shot in the dark. This is amazingly frustrating for me. This is why childhood cancer research is so important. I have a child who is ready to fight but has no weapons to do so and its unfair. So please, Pray for a miracle for my baby. Pray that the drs are wrong, and if not then Pray that any new chemo will at least offer him symptom relief without making him sick...pray that we can try radiation and it helps his comfort because he is not giving up and we are standing behind him and beside him and supporting his choices 100%. This is his journey and we are simply along for the ride.

From Momma:
- Who stopped by my house this evening I'm sorry I didn't catch your name
- Praying tonight for Julia's blood counts. I'm trying things that's supposed to help her immune system but she doesn't want anything to do with it. The only thing she says taste normal are Twizzlers :0 ( I hate feeding her sugar but I've tried every fruit and veggie in season.
If her counts drop we can still stay home but we have to keep her fever free.
So any and all visitors wear a mask and sanitize hands at the door. Its so important she doesn't catch anything.
Please be in continued prayer for her

Having fun at Papa's Store

Round 1 Complete - Home!

Specific prayer request of the day: Pray her counts stay high and that there are no infections, it's such a joy to have happy, giggly Juls back, praise God for that and ask that He keep her healthy and strong and HOME!


From Grandpa David:
-Stopped in to see Juls for a few mins. I put on my mask before entering and when she came around the corner I acted like I was a robber, she said paw paw you scared me then then went into her big laugh that was so cute. We watched tv and played while she munched on her cucumber she was in a really good mood. Lots of smiles and laughing. Jim and Steph stopped by so I told her see you in the morning, she looked up and smiled and shook her head yes!!!!!!!!!! Lord keep looking after our little Jul's that her counts stay up and her fever and infections stay away. It is so nice having her smiling face home again.
-Sounds like miss Juls is getting ready to come home!! Yea!!!!!!!!! Let's pray her numbers stay up and her fever stays away this time!! Due to the increased chance of infections anyone coming into the house will be asked to wear a mask and sanitize at the door before coming in even Paw Paw. I hope she will be able to spend a few days home this time. Can't wait to see her again in a couple of hours. Continued prayers for this Little Angel and all Gods sick Angels. May he heal them all!!!!!!!!!!

Kids Jamboree!

From Grandpa David:
-Went to Union for the Kids Jamboree got to meet the other children and their families. There was a lot of activities going on. Jamie has posted some pics from this afternoon events. A special Thank You for all the volunteers for their hard work and support to make this Jamboree a BIG success.

Video from Suzy of the helicopter coming in for the benefit 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The Jamboree was for several children fighting for their lives. Please visit their Facebook pages to pray for them as well!

Read more about Hayden - visit  Hayden's Journey
Read more about Zachary - visit Team Zachary
Please let us know if you have a site for Harmony, we'd love to share!
 

Cycle 2, Round 1, Day 5 - Jamboree and LOTS of vistors

From Momma:
-Juls has been handling this round of chemo a little better shes been getting much needed rest. She didn't eat much today but I hope I can get some healty stuff down her when we get home!
She had several visitors today but her favorite was Papa Dave!!
Please pray for her health and her counts. Her counts will start dropping soon and I pray she won't end up in the hospital again before her next round. Thursday is Richie and I's 10th anniversary and we aren't planning anything but it will still be nice to be away from the hospital.
Please continue to pray for her. Praise God for all he has done!!
Without Christ I couldn't face the day but because of him I have hope, faith, reassurance that my little girl will win this battle


From Grandpa David:

-Went to Union for the Kids Jamboree got to meet the other children and their families. There was a lot of activities going on. Jamie has posted some pics from this afternoon events. A special Thank You for all the volunteers for their hard work and support to make this Jamboree a BIG success. We didn't get to stay for all of it because I had a Little Girl wanting to see Paw Paw so off to the hospital we went. Juls was sitting on Daddy's lap when we got there watching Care Bears movie she looked up with her big smiles when we walked in. She seems to be handling this round of chemo better since her first day on Wed. if all goes well she may get to come home tomorrow night. Praying that she does. I was just getting ready to leave when Corey and the crew showed up with Tuffy, Jul's really enjoyed seeing him he had her laughing that was so nice to see. Tuffy we will have a special place in our hearts for all that you did this weekend at the truck pull and hospital for Juls Thank You. There are so many people that have helped in so many ways that we can't begin to Thank Everyone enough, All I can say is I am so glad that we have such a huge Family support team, Prayers, phone calls, just stopping by wishing us well. Lord Bless each and everyone of these people they are your special angels.

Here's a video of Juls talking with Tuffy about painting her with her toes! 

Pullin for Juls!

Thanks from the family

"Just now getting home from the truck and tractor pull for Julia. The pull is still going on I can hear them all the way out here at my house. Despite the rain and temp. dropping it was basically a sucess. ... The support from the pullers was unbelievable they even donated their winnings back to Jul's. Today has been a long day but worth it for Julia. .... I want to Thank everyone that was part of today's event for all their hard work and time without you this could not have happened. "
"Tuffy we will have a special place in our hearts for all that you did this weekend at the truck pull and hospital for Juls Thank You. There are so many people that have helped in so many ways that we can't begin to Thank Everyone enough, All I can say is I am so glad that we have such a huge Family support team, Prayers, phone calls, just stopping by wishing us well.
-Grandpa David 


 




  


"I'm still just stunned. So many people spent hours working the track, my best friends were right there with me praying the sky would clear up, guys pulled their trucks and tractors from all over the place, waited 2 hours in the rain, and then donated their winnings PLUS extra money..all back to some little girl they don't know."
"Thank you so so so much to all the people who worked so hard to put it on, the pullers and everyone who sat in the rain and cold."
-Cousin Sarah 

From organizers and and attendees

"Last nights Pullin' For Juls Truck Pull was a tremendous success. I was worried the rain would interfere with our event. However, just when I was being asked to attend a meeting to decide whether or not to cancel truck pull, I heard everyone get excited. Looked up in the sky and saw Julia's rainbow. I knew it was okay, and like always this was her sign from God that he is with her. The meeting was unanimous, and all drivers were ready to pursue event. Even had one guy cheering, "Lets do it for the girl! We are here for her!!!!!' The support was just emotionally wonderful. Most pullers donated their winnings back eagerly. I cannot begin to name people for their support. I do know that paw pa Dave worked nonstop and worked so hard. He would do anything for his family, and that was evident last night. He worked from beginning to end with a smile on his face. Julia is truely blessed and so are we for having the opportunity to know her and her family."
-Jodie Keeney-Wilson
 
"I was so blessed and impressed to be apart of "Pullin for Jules"!!! So many people worked so hard to make this happen! I started to get a bit discouraged when the weather wasn't cooperating, and when it came time to make a decision to go on despite the rain or cancel, I asked all the pullers what they wanted. When I said raise your hand if you want to cancel, NOT A SINGLE hand went up!! They all said we pull!!! And That we did! Well over half the pullers donated prize money back and many more gave donations!! So proud and tired!!! It was a success!!! "
-Amy Jo E.

 

 
"Last night's truck and tractor pull was amazing. I can't say enough how thankful we all are for everyone that came out and supported Julia last night. I want to say a personal thank you to each and every volunteer and puller because without you guys last night would not have been possible. It was truly amazing to see all the support and all the love from everyone. We had a ton of people willing to drop everything and help in any way possible. The concession stand workers, the people that work the gate and all the people helping with the truck pull itself. You guys will never know how much the family appreciate you all. The organizers and committee members all worked extremely hard to make sure this was a success. A double rainbow in between rain showers showed us that Julia was truly there with us watching all the awesome things going on. Also Tuffy the rodeo clown was amazing and a whole lot of fun. Thank you so much for all you have done as well."
-Suzy W.

"I didn't know there were so many different shirts supporting Juls!!!! It was amazing to see all the people in their array of Team Juls !! Everyone loves you & are pulling for you!!! God Bless all the family, friends, sponsors for all their hard work! Once again, God brought the community together to rally for Julia & family once again, love, prayers & support. Even Jaron worked hard for his little niece!"
-Debbie D.
 
 

Cycle 2, Round 1, Day 4 - Pullin day and vistors!

From Grandpa David:
Just now getting home from the truck and tractor pull for Julia. The pull is still going on I can hear them all the way out here at my house. Despite the rain and temp. dropping it was basically a sucess. It was later before they were able to get the track in shape to start pulling, but once they did we had a great pull. The support from the pullers was unbelievable they even donated their winnings back to Juls. Today has been a long day but worth it for Julia. Tomorrow will be another busy day we will be in Union to help support Kids Jamboree. It will be at Union Park from 11:00 am till 4:00. Then it's off to see miss Julia can't wait to see her. She's been on my mind all day. I want to Thank everyone that was part of today's event for all their hard work and time without you this could not have happened. Praying tonight that Julia is having a good night. Sleep little one I'll see you tomorrow.

 














From Grandma Mary Ann:
Went down to see Julia after I dropped off the other grand kids at school yesterday. Got to stay a little longer cause Rachel was going to pick up the other kids from school and bring them to the hospital. I also brought Julia cinnamon melts like paw pa did but she still wasn't interested in eating them! She had gotten sick from the chemo and that was what she thought made her sick. Later I started to take a bite of one and she said "Grandma you'd better not eat that it will make you sick!" Got to see her feet and hand paint, go to the garden, and later do some Picasso art. Kate, a little girl from Hermann, was in the art room with her. Julia left a little earlier than Kate and after we got back to our room for awhile, Kate came in and gave Juls a picture she had made for her. In between and after all that, she snuggled in my arms and we watched Care Bears for several hours. Praise God for all he has done. Thank everyone for all the thoughts and prayers and please say a prayer for Julia's friends at Children's, Kate, Janet, Olivia, and Malaysia and all the other sick little children there.

Cycle 2, Round 1, Day 3 - Sleeping Beauty

From Grandpa David:
-Got up early this morning and went to St. Louis to see my little Juls I was trying to be there when she woke up , but she was already awake. Her mom told her I think Paw paw is coming and she gave her a big smile. She loves cinnamon melts so I had to take her some , but she wasn't in mood for it today. We all went down to therapy to do hand and feet stimulation the put a big piece of paper on the wall and she got to paint a pic using her hands and feet, then they took it to her room and put it up for her. We also went to the Garden, then off to Ronald McDonald room, we just hung out there

-Message about Hometown Appliance: I'm sure by now most of you know that Julia is my Granddaughter and that she has Ewing Sarcoma Cancer she is being treated at Children's Hospital. I also have a grandson Jaron that is about to under go another major back surgery on Oct. 10th. If you come by the store or call and can't reach me I will most likely be at the hospital. Some days I may open and get a call from one of them and I will close and go. ... I will still try and help you the best that I can. Please remember both of my grandchildren in your prayers and Thank You for your help and understanding!!

From Momma:
- Sleeping beauty
The chemo just wipes her out.
Praying again for counts to stay high. She does so much better at home. We have two more rounds of chemo then we go home and hopefully stay there for 2 weeks!!!
Pray pray pray for strength and healing!! And if you know any secrets on how to raise blood counts or boost immune health please share.
Praising God for all that hes done and all hes going to do. I'm so grateful I serve a loving God!

Cycle 2, Round 1, Day 2 - SPOT FREE!

Specific prayer request of the day: Keep the prayers coming for healing, and clear scans. Pray for Julia's mind to clear and for her to be more herself with the lower dose. Pray that the next scans are completely clear!


From Grandpa David:
-Today has been such a blessing for me. I received a phone call around noon that Juls was upset and wanted to know where Pa Paw was, when I heard this it didn't take me long to close down the store and rush home shower and get myself to the hospital. I called Rachel to let her know I was on my way and she said Juls was sleeping, I got to the hospital and she was still sleeping and within 5 mins. of being there her eyes opened and she heard my voice her head spun around and her smile was so big she grabbed my arm and started hugging it and held on so tight she didn't stop smiling for at least ten mins. She finally let go when we asked if she wanted to go to the Garden Pa paw had to carry her. We sat in the swing, then went to play area and played, finally she was ready to go back to the room. After being in the room for a while her Cancer Dr. came in and was excited about Julia's xray from yesterday she even went and got another computer so she could show Rachel and Richie the good news. Julia's first scan showed what looked like marbling in her lungs and now her lungs just looked white. Praise the Lord. We have just been given a miracle that we all have been praying for. They will do the full scans after this cycle of chemo, bone marrow, and now the lungs God is truly showing us His power and mercy!! I know that God is working through Julia to reach out to me and our family. We just thank the Lord for all the support and love from our huge extended family each and everyone of you. Also as the doctor was in the room showing us the scan we received a text pic. of a double rainbow over Rosebud and I see by others posts that several of you also saw it. I believe it was from God showing us that everything will be alright.

From Momma:
-Juls says mom little people have to teach big people how to be brave

-PRAISE THE LORD!!!!
Juls dr came in and told us the actually couldn't detect ANY cancer with the chest scan!!
The radiologist couldn't see any!!
But since this isn't a CT scan they assume there is some residual cancer....assume!!
Yay praise the Lord!!!
They told us with this cancer is so hard to get out of the lungs!
God is hearing us please praise Him and keep praying.
This is so awesome to see God move.
Also they are lowering her chemo dose due to her neurological reaction

 

   

 

Supporting Team Juls at Mizzou and around the world protecting our freedom (thank you Jessica for serving!)

Cycle 2, Round 1, Day 1 - Scans brought good news!

Specific prayer request of the day: Pray that the doctors will listen to Rachel and help them figure out what is causing the changes in Juls. Pray that this cycle is easier for Juls and that she doesn't have to spend as much time between treatments in the hospital. Pray for Janet, Julia's friend in the hospital as well as the nurses and doctors that see this battle every day and fight on.

From Grandpa David:
-Tonight I ask for special prayers for the many skilled Nurses and Doctors that work at Children's hospital each and every day. They are the first responders when the families gets the news of their loved ones illness, they are the ones that treat them while they are sick, they are the ones offering comfort for the families, they are special people to give of themselves to make our loved ones better. I don't know how they do it ,but I thank God for each and every one of them. Lord continue to use these people to do your work. I ask this in Jesus

name Amen!!!!
-Julia is now receiving her chemo they started a couple of hours ago. Her chest scan came back with great news some of spots are completely gone and the remaining spots have all shrank. Praise the Lord. Her care nurse talked like they maybe able to make a copy of the before x ray and then the one of today's so the kids can see that Julia is getting better. She was watching tv and the next thing I knew she was asleep. It was so nice to be able to sit there and hold her she didn't even know they had started. Please keep praying for little angel. I also got to meet Little Janet she is one of Julia's new friends please remember her also in your prayers along with all the other children they all need our prayers.

From Momma:
-So after her round of Ifosfamide (chemo) her speech became slurred, she was staggering and then had an extreme angry outburst kicking and hitting. She threw herself on the floor and wet herself. anyone who knows Juls knows she doesn't do this!!
Then she immediately fell asleep.
I can't get the dr to take me serious as I am extremely concern for neurological side effects.
Please pray for her

-The news everyone is waiting for....her cancer in her lungs has gotten smaller and some is completely gone!!!!
Keep praying
Gods hearing us

 

Waiting in prayer

Specific prayer request of the day: Pray for the scans tomorrow, pray that Juls is cancer free!

From Grandpa David:
-Lord we come to you this evening Thanking You for laying your healing hands on Our Little Julia, we know it's by your power and grace that we have already experienced a blessing by having her bone marrow come back clean. Lord we ask that you continue to lay your hands on her lungs, lymph nodes, liver, and her leg and anywhere else this terrible cancer may be. Lord we are praying for miraculous results with tomorrow's scan. Be with Rachel and Richie tonight Lord because it is so hard to have to wait for what seems like eternity for tomorrow to get here. Give them safe travel back to the hospital in the morning. Also be with the rest of the children during Rachel and Richie's absence. For all these things I ask in Jesus name Amen!!!!!!!!

From Momma:
-God is so amazing
He knew I needed someone to pray with me . The UPS man stopped to give me a package and said I feel God telling me to pray with you and he asked if that was ok. Such a wonderful prayer.
Thank you

Back at the park enjoying time with Aly!

-"To you be the glory forever, to you be the glory Lord amen"
Praying and expecting great things tomorrow!
My soul can't rest!