11/30 - December 3rd scans on our minds

From Momma:
-Expecting clear scans Dec 3rd!!

From Grandpa David:
-One of the best post that I can give is that it has been a quiet and uneventful day!! Julia is still doing great still smiling and being the happy little girl we all want to see. She was doing so good Mommy even got to go and have a few hours without any kids to do some Christmas shopping. We are Thanking the Lord for each and every one of these days because that is one day closer to Julia being totally healed and what a glorious day that will be.

-Correction On my post I had Monday, but scans are on Tues Dec 3rd. Candlelight vigil is the day of scans on Tuesday.

11/29 - Christmas house

From Grandpa David:
-Julia had another good day spending time with Mom and Dad at home with her siblings. A trip to the Chinese restaurant was on tap during her busy schedule. Daddy put up Christmas lights on the house for her she wanted a Christmas House. I stopped after work and she was sitting on counter helping Mom make pancakes for supper. Praying for many good days like this. Jaron spent the day with me at the store we had a good time he even wants to come back tomorrow I enjoy spending time with my buddy. We are expecting a miracle on Tuesday when Julia has her full body scans and we will be having a candle light vigil all day 7:00 am to 7:00 pm Light a candle for Miss Juls wherever your at home, work, and pray without ceasing! . Spread the word!

11/28 - So much to be thankful for!

Videos of the family that will make you thankful for giggles 

• Scrunchie wars!
• Julia running to Sarah 
• Aly running to Sarah
• Duck, duck goose with Grandpa David

From Grandpa David:
-I hope everyone had a wonderful day.

-Julia and the rest of our family got to enjoy Thanksgiving dinner at church today. Juls really enjoyed the turkey, then she started playing running and laughing she had several of us chasing her and playing even brother Kevin got in on the fun. We were getting ready to come back home and Julia and Aly wanted to come home with us well of course they can!! Shortly after we got home Tonyia, Sarah, and Jennifer came over and started playing with the girls you should have seen those girls laughing running giggling the afternoon just flew by. Hearing all the laughter in the house and seeing Julia feeling so good was a true Blessing Thank You Lord for these special memories!!!

From Cousin Sarah:
-Today was one of the best days of my life. If we could have frozen time for this afternoon, it would have been perfect :)

11/27 - Momma going offline for praise

From Momma:
-While in the hospital it's so easy to get caught up in the "what ifs" and forget the reassurance that the lord has given me. Not that I lost faith but seeing all those babies and hearing all those stories made my mind wonder what if she's not healed......Julia had a wonderful week of chemo. No nausea, no horrible side effects and she ate pretty good. As I was holding her singing "Lord I Rest in You " because my soul was struggling and restless. I heard the Lord tell me....not in a whisper or a still voice but loud and clear......."My child, my child she will be healed!!"
I just sat there for a minute taking in what God had done. He rested my soul and took away every what if thought. He once again gave me that reassurance I needed!! I jumped up and told Richie what happened. We cried together and praised God!!! I know she will be healed! Not by my works or the drs but by the Lord!
I have had several times in my life where I've heard the Lord and every time He's proven Himself to be true.
Her scans are now Dec 3rd so I'm praying that they will be clear. I will also be offline for a few days prior to her scans so I can spend that time praising God instead of being on Facebook. I'll post her results immediately after I find out.
Thank you to everyone

From Grandpa David:
-We all got to go to McDonalds this morning for breakfast. Julia was all smiles as well as the rest of the kids even Jaron. Julia had her usual pancakes and sweet tea. Richie worked today so when he got off they made a family night out to the movies. Jamie and Jaron are here visiting and Jaron is updating his Kindle. So nice having everyone home again. Jaron is doing really well after his surgery. A big thank you for all your prayers and from our family to yours we wish everyone a Happy Thanksgiving!!!!!

 

Team Juls cars at Blizzard Bash, thank you Josh and Cedric!

11/26 - Cycle 3, Round 1, Day 6 - Bustin' out!

From Momma:
-Eating popcorn while getting a blood transfusion. We'll be bustin out around 3:15

From Grandpa David:
-Kids are both now home. Julia finished up this afternoon and got to come home. She was sitting on the kitchen counter when I stopped by to see how she was doing. She looked up at me and gave me one of her big smiles it was so good seeing her in a good mood and feeling this good after finishing her round of chemo. Praise the Lord. Her scan now will be on Dec 3rd. Praying for amazing result we will find out after that what will be next in her treatments. Jaron was doing a little better today he even wanted to go to the Chinese restaurant for dinner. His older sister Courtney and I got to spend some time with him this evening he was in good spirits and playing games on his iPad. We give God the Praise and Glory for having all our family home for thanksgiving and looking forward to having Julia home for a few days!!!!

Candlelight vigil from 7 am to 7 pm on December 3rd in honor of Julia's family and her scan results! 

11/25 - Cycle 3, Round 1, Day 5 - Feeling playful

Specific prayer request of the day:
Please be in prayer for her scans now on December 6th and surgery on the 20th! Pray that she can be home after this treatment and pray that everyone can be home for Christmas.

From Momma:
-Juls and Ahna riding on Juls' pole! After chemo she ran the hallways and rode on her pole just a giggling the whole time. She's been in a good mood and doing so great. God's definitely holding her close. Thank you for all who are praying for her. Her appetite is down but she hasn't been sick.
Pray that her blood count doesn't bottom out and she doesn't catch anything. Shes such a happy happy happy girl. Please be in prayer for her scans now on December 6th and surgery on the 20th.

From Grandpa David:
-Jaron had a good night sleep last night even when I had to wake him up to give him his Med. he was in good mood he wasn't tossing and turning like the night before. He is having a problem of not eating and anyone that knows Jaron this is not normal he is also having trouble with bowl movements it may just be the meds. he's on. I asked him if he would be ok with Mom taking care of him so I could go see Julia and he said that he would be. I hurried home changed and went to see my other angel. I stopped and picked up her sweet tea and was able to get a order of pancakes. She was surprised to see me with it. Even though she was sitting on Grandma Mary Ann eating pancakes and drinking sweet tea so we put mine in fridge for later. We went to Ronald McDonald room and she went walking down hallway just swinging her arms having a great time laughing giggling so thankful this round is going so well. We went to therapy room so she could do some different exercises she did really well there then back to her room to start her chemo treatment this is the last one for this round then her 24 hr. flush and back home again. Yeaaaaa!! This thanksgiving will be extra special having both grand kids back home Thank You Lord for all your blessings you have given our family.

11/24 - Cycle 3, Round 1, Day 4, Chemo upped

From Grandpa David:
-Jaron had a really rough first night at home hoping today and tonight will be better. I heard they upped the chemo on Julia yesterday and Rachel said she could tell a change in her right away she's more grumpy praying this will pass very quickly and get our bubbly Juls back.

11/23 - Cycle 3, Round 1, Day 3, Grandpa's Update!

From Grandpa David:
Jaron finally made it he was able to pee and just in the nick of time nurse's were heading into his room to put catheter back in when Jaron said let me try one more time and success yeaaaa. He did good last night , but was in some pain this morning they gave him pain med. and told us we were free to go. He did well with the ride home and even walked into the house by himself. It didn't take long for him to wear out. Jamie fixed him some supper and then I put him in bed and now he's sleeping. He wants me to stay he feels safer with me lifting him from bed and from chairs. I believe he was happy to be back home. Julia was doing great this morning I went and made a McDonalds run and brought her some sweet tea and pancakes when I walked in with them you should have seen the smile on her face. She ate them and then her daddy got there and he had some so she ate some more then she went to Ronald McDonald Room and had some Roman noodles good to see she hasn't lost wanting to eat. She' still laughing and giggling she even has other kids coming to her room to see her. Wonderful I believe God is using this angel to touch so many of us. She gets down but never broken she comes back even stronger. Thank you Lord for giving us such a blessing in our lives.

11/22 Cycle 3, Round 1, Day 2 - Jaron and Juls update

Juls ~ From Momma Rachel:
-Juls singing a care bear song
"Growing up is some thing you can treasure happens everyday"
She has no idea how right she is. So many on this floor will never have that privilege. Juls is doing so good please keep praying for her.


Jaron ~ From Momma Jamie:
-He did it!!!!! Thank God! The catheter was getting ready to go back in! Thanks for the prayers 
-This may sound crazy but please pray for Jaron to pee. He hasn't went on his own since surgery and they r beginning to get concerned.
-Mommy doing what she does best. Jaron getting his hair washed
He seems to be doing better today

From Grandpa David:
-Jaron is doing so good hard to believe the difference between yesterday and today. He has been out of bed most of the day we did a long walk. He felt so good we got the ok to go see Julia. He had to use a wheel chair to go to see her being it was so far and we were there for awhile. Julia was so happy to see him she laughter and giggled and we even got our pic. taken by Rachel. Juli
a is doing good also so happy to see both of them smiling and laughing. Jaron is doing so good he might get to go home tomorrow. Thank You to everyone for all your prayers and for lifting our family up.

11/21 Cycle 3, Round 1, Day 1 - Disappointing scan news - Pray for Jaron

From Momma:
-Juls opening a gift today. She wore that smile all day.
She seems to be doing very well.
Scans are now on the 6th and surgery the 20th...not sure what kind of surgery yet. ..but it's scheduled! :0/ I pray we are home for Christmas!!!

-Good news: Juls is having a party, she's feeling great and eating great!
Not so good news: they moved her scans to December......boo
They want to give this round a chance to work!
They don't understand that God already has!

-Started the day off with pancakes now off to children's for chemo



From Grandpa David:
-Jaron had a very rough night we could not get him comfortable and he had a lot of pain. Pain management team came in and changed some Med. and finally got him to sleep around 5:00 am doctors started making rounds at 5:45 so not much sleep. We got Jaron up twice today and second time he did really well. He took a long nap afterwards. He just got his first food a few mins ago and gobbled it down. Hoping tonight goes much better. Julia made it here this morning and she brought my sweet tea. I told her that I would share it with her, so we have been enjoying it together. She is doing really good and is getting her second chemo med. now I just went and saw her and she said why don't you stay a while Paw Paw. Told her I had to go and check on Jaron and would be back. Got word that they are pushing her scans back to Dec 6th and possible surgery on Dec 20th. Praying that the scans come back clean and no surgery will be needed at all. Please pray for all the children here that God reach out and touch every one and heal their bodies back to health.

11/20 - Thinking of Jaron and Lilly

From Momma:
-Julia had a great day yesterday She's so smiley and happy.
I saw on fb a little girl named Lilly Bumpus beat her cancer and 3 months later it may be back. My heart broke as I know this cancer has a very high recurrence rate. So yesterday I prayed and prayed for Lilly and Julia. Julia and I sang songs. Its all in God's hands. I truly believe that the Lord will heal Juls. I have confidence in the lord that he hears my cries and shell be healed. I do still however get scared and heartbroken. It's then especially I sing songs like "How Great is Our God" and "Lord I Need You Now"


From Grandpa David:
-We just got moved to the 10th floor so much more room feels like were in the Hilton. Jaron is doing good it is hard for him to get comfortable wanting to turn over a lot. He sat up in a chair for about 15 mins. Tomorrow we hope to get him drinking and eating some. Maybe even try getting him to stand up. Continued prayers for a speedy recovery. Looking forward to seeing Julia in the morning just wish it wasn't here. Julia is going to bring Paw Paw sweet tea in the morning Little sweetheart got to Love her snuggle time tomorrow!!!!!!

-Jaron had a restful night for the most part. They were worried about his blood pressure being to low and was going to put another Iv in even though they had him sedated he still had the ability to fight them and they aborted those plans for fear he was going to rip his other tubes out he even pulled one of his arm restraints loose. We finally got him calmed back down and he rested till morning. They just removed his breathing tube and is breathing ok on his own. They are still talking about trying to get him out of bed today not so sure how that will go. Julia has a dentist appointment this morning so happy she is doing so good. I will get to see her in the morning when she gets back down here.

11/19 - Surgery day for Jaron

From Momma:
-Juls singing Lord I Need You by Matt Maher. Our favorite song

From Grandpa David:
-Jaron is all done and everything went well. He is in PICU and they are going to keep him sedated tonight so he can rest and breath easier. Jaron tries to pull his breathing tubes out and that's why he will be sedated. Doctors told us surgery went good and that they were able to straighten his spine even more this time then they did 2 yrs. ago. They fused his spine and put bigger rods in this should be his last surgery on his back. Thank the Lord for that. We got to go back and see him a few mins. ago. He looks so peaceful laying there right now I hope he will do ok tomorrow when they bring him back awake. sounds like we will be here tomorrow and if things go as expected he will move to a room Thursday. They still are hoping that he might go home in about 5 days. I just talked to Rachel and sounds like Julia is still eating everything in site. Maybe we can put some meat back on her bones before Thur. Missing my snuggles with Juls will have to double time when she gets back down here. Thank You Lord Jesus for being here and wrapping your comforting arms around us as we sit here and wait for Jaron's recovery.


From Aunt Stephanie:
-I'm feeling blessed today. It's been a day full of smiles. Myah and Breydan spent the night and Myah woke up with a big smile on her face and was smiley all morning. I just got back from lunch with Rachel, Ahna, and Juls at the Chinese restaurant (of course:)) and they were full of smiles. It's so good to see Juls happy, smiling and giggling again. I'm praying she stays this way. I'm also praying for Jaron as he is now in surgery. It's definitely a wonderful day full of God's blessings!

11/18 - Junkin for Juls, praying for Jaron

From Momma:
-It amazes me how people hear about Juls and immediately go into action to help her! The Joshua Wagner family has done so much and a special thank you to the Blizzard Bash derby family. We are so blessed to have such wonderful people in our life!!

From Grandpa David:
-Another wonderful day with the kids. Julia and Myah were quite the duo this morning at McDonalds. Julia almost ate everything in site today which is a blessing in itself. Julia had a very good day playing we got to spend a little time with her this evening Grandma got snuggle time and Juls looked at me like Ha Ha I said hey you she giggled and finally gave me some snuggle time too. Josh and Tonya came over this evening and gave Juls a big check she modeled her Junkin For Juls shirt and held her big check with a smile from ear to ear. Special Thanks to Josh Wagner and Tonya and all the Derby families for all that you all have done for Juls and our family. Blizzard Bash was awesome and the support truly amazing. Sarah and Jennifer can't wait to see all the great pictures. Please continue to pray for Jaron as he is about to have his back surgery in the morning he will have to be there at 5:45 his surgery will take about 6 hrs. I will be there with him this week so the store will be closed. I asked Juls if she was going to bring me a sweet tea to the hospital and she says maybe Thur Paw Paw that girl!!!!! Gotta Love her thank you Lord for blessing me with such a wonderful family and so many friends!!!!!!!
 

Better days and derby!

From Momma:
-Juls loves our Chinese restaurant so much its the only Chinese she'll eat!!! Tony and Wendy are so kind and are keeping Juls nice and full!!
Richie just made his second trip up there today. Had to get extra since they are closed tomorrow! So glad she's eating

-Juls bday is January 25th she just wanted me to make her bday pancakes last night.
She is so happy today! Full of smiles, hugs, kisses, laughs and love!
Today is so amazing! Truly a gift from God

From Grandpa David:
-I Love to be posting about these wonderful days after having to post about those heart breaking days. Juls is back our angel that we know and love. She has been eating everything in sight she ate so much Chinese today that Richie had to go back for a refill so she can have some tomorrow since they are closed on Mondays. She has been smiling and laughing we stopped by this evening and when she saw me she was giggling looked at Rachel and said I told you Paw Paw would come here to see me, that I didn't have to go to his house. She got down from the table and came over to snuggle with me on the couch even Grandma Carol got some snuggle time. This has been a blessing from God and we give Him the thanks. We also got to spend the afternoon with Jaron we told him we would take him anywhere he wanted to go for lunch before his surgery and he wanted steak Texas Roadhouse, so road trip to St. Louis yummy lunch then while we were down there already we had to go to Ted Drews for dessert. Jaron was one happy boy so was Paw Paw too. LOL Please remember Jaron in your prayers he will be having his back surgery on Tuesday Lord lift him up and the drs. and nurses as they operate to fix his spine and heal Jaron that he won't have to go through anymore of these surgeries. We have seen your healing hands at work with Julia and ask you Lord to lay these healing hands on Jaron. I ask this in Jesus name Amen.

-Juls is having a good day so far she had a bowl of cereal for breakfast then went to McDonalds for pancakes then to church. and I wouldn't be surprised if she's not at Chinese now she even took pancakes to go home for later she has to make up for 2 weeks of not eating. Love it and Love her smiles.

We will have a complete post with derby photos and a huge list of thank yous, because the support was phenomenal! For tonight, this is a photo of Joshua Wagner (FTS Racing #44W) accepting the check from derbytees.com and the Ultimate Derby donations.  Josh and Tonya especially did so much for Juls this weekend and we appreciate it more than we could ever say. THANK YOU!

11/16 - Pancakes, fries and praise

Birthday pancakes at 10:00 ?
Why not

From Grandpa David:
-Julia got up and was ready for McDonalds and she ate some pancakes and enjoyed her sweet tea. As they were leaving she said "Mommy I want to go have Chinese." Rachel said, "You just ate and they're not open we have to wait a little while," so they picked up Mckenzie from her friend's house and then they went for Juls Chinese. LOL at least she wanting to eat. Yeaaaaa. Then she wanted to go to Wal Mart. I stopped by the house on my way home and she was helping Mommy make cookies she looked up and gave me her big smile and then started laughing, little stinker knows how to get to Paw Paw's heart. I know she's feeling better because she doesn't want to stay home. She wanted to go to Texas Roadhouse for supper Rachel said they will be closed by the time we would get there. Juls said ok let's go to McDonalds for some French fries Rachel called me and I told her to get them and bring her to our house and Juls said yes that would be good, as thye pulled in Juls fell asleep she was tired so they went back home. :0( I had several people come by the store to check on Juls and letting me know they are keeping us in their prayers. Thank you for that. I had a little girl about Juls age came up and gave me a big hug and said she couldn't wait for Juls to get better so we can have a celebration at a park so they could play together. She had come in with her mom and grandma to meet Paw Paw Dave I enjoyed visiting with them and hope they come in again. Remember to give God the praise and glory for all that he has done. I can't wait for tomorrow to see Julia at church in the morning it has been a while since she has been able to go.







-Good job Joshua Wagner has made it to the feature at Blizzard Bash!!!!!!!!!!!!!!!!

11/15 - Transfusion and derby departures

From Momma:
-Juls got an antibody transfusion today. Kinda like blood only it's antibodies. So hopefully she'll kick this virus and won't get admitted so often. She'll get this transfusion every other month.

From Grandpa David:
-Picked up Aly and Andrew from school and took them to the store with me. Jamie called and wanted to know what we were going to do for supper, bet you can't guess where we went yep Chinese met her and Myah and Breydan there. We were getting ready to leave when phone rang it was Rachel she said they had just got back from the hospital. Julia had an antibody transfusion this afternoon and almost as soon as she did she started feeling better, and now she wanted to come and have Chinese also. We waited for them to get there and I was so surprised at how much better she looked she even ate some food and then wanted ice cream. Special moment was when she looked up at me and said I need some snuggle time and got out of her chair and crawled up on my lap and snuggled looking up at me smiling. We even got to have a pic. with Grandma Carol she was laughing and cutting up I was so happy to have our Juls back. Giving God the praise and glory for raising up our little Juls. Julia will have these antibody transfusions every other month it will keep her built up better and she shouldn't have to be in the hospital as much. Her chemo has now been moved to Thur. to let her build up more strength. She is already looking forward to going to McDonalds and going to Walmart in the morning.

-More Team Juls Cars headed for Blizzard Bash!! Safe Trip for all.

Chemo postponed and FTS Racing/Team Juls on the road

From Momma:
-Juls had her blood redone since there was a problem at the lab. Her numbers are better although ANC is now too high....but platelets still a tad low will start chemo Tuesday same day as Jaron's surgery. I think she needs the weekend to rest.

From Grandpa David:
-Took Julia her sweet tea this morning and she was still in bed I sat down next to her but she wasn't in a good mood. I tried to talk to her but she wasn't interested. She went to the Chinese restaurant for lunch but didn't eat much she took some along so she could have it for supper. Rachel brought Julia and Ahna past the store to see me I tried to rock Juls but all she wanted was Mommy :( We found out they had made a mistake on Juls blood work yesterday and had to come and do it over again. Good news her counts were better than they thought, but some counts are still to low for them to start chemo. They have pushed her chemo back to Tuesday. At least she will have a chance to rest up and get stronger. I stopped by this evening and they were eating supper Julia was sitting on a chair next to the TV cabinet trying to hide I acted like I didn't see her and asked where's Julia all of a sudden she said here I am I acted like I was surprised she started laughing and giggling with a big smile, it was so nice to see her happy again. Thank You Lord for giving me that moment it was special.

-I had a chance to see the Juls Derby car that Joshua Wagner has been building for Blizzard Bash last night. It is one mean looking car this is the first time I have seen one of these type derby cars and the work and time he put into it is unbelievable "WOW". They are leaving this morning and I Pray for a safe trip They will be representing Team Juls and I can't Thank them enough for everything they have done for her. Blizzard Bash is the largest indoor derby in the Country and will be on PPV I am hoping to be able to watch it since we can't be there in person. Good Luck FTS Racing Team and Team Juls bring back a Victory for us. "GO TEAM JULS"

11/13 - Counts low, but Team Juls is on the move

From Momma:
-Just got a call from Juls team at Childrens her counts are to low to start chemo Friday. So now she has to wait until next week.

From Grandpa David:
-Our sweet Juls isn't popping back like she did last round. Her chemo is going to be pushed back a couple days to try and build her strength up. She needs another platelet transfusion and she is dehydrated. She's still not eating hardly anything, she did have me bring her some Chinese this evening but wasn't eating much. She still drinks her sweet tea, but that isn't enough. Smiles are hard to get I did get a couple and a giggle but really had to work for it. Praying that with a couple of extra days to rest she will return back to her bubbly self. Dear Lord please heal our little angel that the whole world may see your loving healing hands at work through her body!!!
Asking for all our prayer warriors for continued prayers.

11/12 - Not hungry

From Momma:
-Thinking about Juls scans that are less then 2 weeks away and the song "how great is our God" keeps running through my head.
I pray that everyone will say how great....how great is our God!!!
To Him be the glory!!
Thank Him for His healing hand on her pray believeing that He hears you and will answer our prayers. It's my belief He has heard our cries and because of our faith she is healed.

-Juls isn't feeling well. Could be from the late night trip to er last night or still being exhausted from her hospital stay or something new. I can't get her to move and she doesn't want to go to town at all. Not McDonalds or Chinese.
Pray for her today that she gets better

From Grandpa David:
-Went to get the kids this morning and Juls was laying on the couch when she saw me without a sweet tea she started with her big tears. I told her I had to take kids to school then I would get her tea so she was ok with that, bet I show up in the morning with one. Juls has been feeling kinda puny yet today but finally she told Rachel she wanted to go to McDonalds that she just wanted to sit there and drink some tea. This afternoon she woke up and wanted to go to WalMart and get some snacks. So she is now feeling a little better to want to get out. Hopefully tomorrow she be even better. Maybe she'll be wanting Chinese. So thankful to have her back home again I did manage to get a couple of smiles and laughs from her this afternoon it was so great seeing it back again. Thank the Lord.

Escape! And only 2 weeks to scans!

Several special prayer requests today:

• Pray that Julia and the whole family get some rest and time together before her next round of chemo on Friday.
• 6 year-old Zachary '''Zac''' Gossage was diagnosed June 17th with leukemia. Pray for him and his family.
• From Grandpa David: On Oct 7th I asked for everyone to remember Jared in their prayers that his cancer had came back Jared also had Ewing Sarcoma, I just received word that Jared lost his fight. Please pray for his family in their time of need and sorrow pray that God will lift them and comfort them to ease their pain of losing this loved one.

From Momma:
-Juls is sleeping and I hope she's able to rest all night. She's anxious to bust outta here. I can't wait to get her back home for a few days.
I realized some things from this visit. It would be so helpful to have some crafts ready for her to do cause when her ANC is below 500 she's not allowed to be in play room and doesn't get to do much.
So if anyone wants to help by putting together different crafts that would be awesome. She has plenty of coloring books.
Another thing that would be helpful if anyone has any ideas of easy meals we could make ahead and bring with us. We are getting so sick of hospital food and eating out.
Her scans are in 15 days. Please be in prayer for those scans. Her next cycle of chemo starts Friday same round that gave her neurotoxicity they lowered last time but are gonna try and rise it again. So please be in prayer over this. Her poor little body. She is so strong and brave. It's clear God is holding her in His hand.

• Anyone with craft idea's or would like to send any craft projects can send them to the Store: Address is --Hometown Appliance and More--214 Hwy 50--Rosebud, MO 63091 Some have been asking how to get items to Julia send them here and I will see she gets everything. Thank You for all your prayers and support !! Paw Paw Dave.

From Grandpa David:
-Juls is back home and she has been sleeping all afternoon she hasn't been able to sleep much for the last several days, so hoping this is just her catching up. Hope she will be more back to herself in the morning. Family are all back together under one roof. Praying she will build up some strength before having to go back Friday for next round.
-They just escaped and are way home yeaaaaaaaaaaaaaaaaaaaaaaaa!!!!!!!!!!!!!!!!
-ANC 2900 this morning praise the Lord and still planning to come home today staff told them today or tomorrow but momma Rachel say's were coming home today Praying that they do I know when I left last night Julia was so ready to be home.

NO FEVER! 15 days to scans!

From Momma:
- ANC 737
No fevers for 35 hours
But still can't go home :0(
Maybe tomorrow

From Grandpa David:
-Home again after another wonderful day with Julia. She called me right after I got home from church and asked me Paw Paw can you bring me 2 rainbow lollipops 1 for me and 1 for Ahna and 2 sweet teas. "I want you to come and I want Mommy and Daddy to leave so we can rock together." Well it didn't take long to head myself toward St. Louis, Carol and McKenzie went with me, Mary Ann came down a little later with Aly and Andrew. As soon as I got there Juls was telling Mom and Dad to leave Paw Paw is watching me. We went to the gift shop trying to find candy soft enough for her to eat tried a couple different kinds, but finally we found she could eat those little choc. doughnuts yea finally she's eating. We sat down in rocker and we rocked for a long time. Then they had crafts with soft clay in the conference room so we went and played there for a hour. Jamie and Jaron and Myah showed up so we went back to the room. Her fever is still down and ANC is 737 they are lowering her morphine some more and so far she's handling it good they are going to try pulling her off some other meds. and if she does ok with that, then home tomorrow yeaaaaaaaaaaa I told her that I was going to work tomorrow since I didn't have the store open last week so I could be with her and that I would come see her at her house she had a pouty face ,but said ok paw paw and reached up and gave me a big hug and told me goodbye, then she reached up for Grandma Carol and did the same with her and told her you come see me at home tomorrow too and she assured her she would. I thank the Lord for such a beautiful day and to be able to spend it with family despite the terrible place we had to be at, but also thank God for having such places so near that know how to treat these sick children. It was good to walk down the hall this weekend and to see so many empty rooms and beds, praying that God's healing hands have been at work. Remember to hug your children and grandkids and tell them how much you Love them.

This weekend is Blizzard Bash, Josh Wagner has his derby buddies signing up to match donations when they win, so prepare to cheer loud for him and Team Juls so they can hear you in Kansas!

Even more ANC! 16 days to scans!

Specific prayer request of the day: Pray that Juls mouth heals, counts continue to go up and that fever goes down!

From Grandma Mary Ann:
-Just came home from visiting Julia. Her jaw looks a little better since yesterday and her ANC came up some. She even felt like giving me kisses and hugs! She finally got to leave her room for awhile to go to the garden and the cafeteria. Just talked to Richie and they were back in the garden. I praise you Lord for all You have done and please continue to be with and heal our precious Julia. As always, thanks to everyone for the prayers and support.

From Grandpa David:
- Got to spend amazing afternoon with Julia we painted played on her kindle took many laps around the floor. She even got permission to go to the Garden it was so special sitting on a bench with her and the sun was setting it was a moment from God is the only way to explain it. Rachel even said this was the first time she had been out since they got here a week ago. Praise the Lord her fever finally broke at 1:00 Sat. Morning and has not returned. Her ANC level continues to rise they have also started cutting her morphine back, her cheek is also starting to go back down. If all keeps going as it is there is a good chance she may come home Sunday night or Monday. Keep the Prayers coming and give God the praise for the turn around in Julia. After leaving the hospital I managed to get back to Owensville before the Dueling Piano benefit was over they were great. The support there was also amazing I just want to Thank Everyone for all the hard work they put into it. It's been a very long day so I want to leave you with this Love your Children and Grand children and Hug them every chance you get They are Precious Angels from God.
-Just received text ANC is up to 378. Just keep climbing you can do this Juls.

Team Juls across the USA!

From Tammy Lee Jones: "This shirt was sent to NH to Kathy Lorton Hawkins and she took it when she went to her chemotherapy treatment at Norris cotton cancer center and the nurses and doctors there signed it for you Juls to show their support for you...you are loved all over the US baby girls...keep fighting and smiling that pretty little smile and we will keep praying!!!!"

11/8 - ANC and appetite is BACK!

From Momma:
-Some days are just harder then others :0 (

Juls seems to be doing a tiny bit better. Hoping tomorrow is even better.
Please keep her in your prayers

-If anyone is coming to st.louis please let me know Juls wants Owensville Chinese!!!!
Chicken on a stick and sweet and sour chicken

-Juls does have an ANC of 34! Yay that's a start! Fever still running 102 and her cheek is still huge. Shes not eating but still drinking sweet tea. She will only sleep in my lap and not in bed.
I'm super tired and can not wait for her to be better and we all can get a good night's rest.
Pray for her ANC to continue to rise and her white blood cells not to attack her cheek which could cause more problems. Pray her fevers leave and don't come back. Pray her cheek and mouth heal quickly so she can be comfortable again. Pray we get to go home soon so we can enjoy a few days at home before we are back next week. Also pray for Andrew, Aly and Kenzie while we are away from them and they try to make sense of all of this.
Continue to praise god for his unfailing love and his healing hand upon Juls. Pray pray pray for her scans on the 25th. I believe God has already healed her and the scans will prove it!!!


From Grandpa David:
-Chinese and 2 sweet teas delivered as promised. Picked up the 3 bigger kids from school and went and met Carol at Beaufort. We all went to see Julia this afternoon, she was so glad to see bubby and sissies she gave each one a huge hug. She grabed one of the sweet teas and wanred me to go heat up her Chinese. I tore it into tiny pieces and gave it to her she tasted a couple of little pieces and that was it. She wouldn't eat anymore so sad she still can't eat this now makes a week since she has eaten, but at least now she is wanting to and thats a start. We put Juls and Ahana into a couple of pull wagons and made laps around the floor Juls still can't leave the floor. After a few laps we went back to her room and she wanted to paint Richie set up paper in the wall and I moved a chair close to it and set her into it and painted her feet so she could do a foot painting , then she wanted to do her hands also a few mins of this and she was done and wanted cleaned up so mommy took her into the bathroom to clean up. I saw my chance and got into the rocking chair with her blanket and when she came out she looked up at me and i put her on my lap and covered her up and we rocked and rocked I told her we were going to leave and she pouted dont go just a few more mins. I rocked her another 30 mins and she fell asleep I laid her down and she rolled towards me and I gave her a kiss. I believe she is doing a little better her ANC was 34 this morning and Praying for much higher tomorrow. We just made it back and I wanted to update everyone. Thank You to each and everyone that has been praying so hard for Our Little Julia. Sometimes we don't get the results as fast as we like ,but we have to keep faith Through Jesus Christ all things are possible and we will get to witness his blessing very soon.

-Yeaaaaaaaaaaaaaa!!!!!!!!!!!!!!!!!! Anc is back only 34 but is finally showing sign of returning!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Praise the Lord........................

11/7 - Still no ANC, 18 days to scans

From Momma:
-Sitting here with Juls in my lap. She sleeps in my lap most of the night. Fever still up and down. Still no ANC!
She active and not just laying in bed.
This could take a while to recover. So we are skipping chemo tomorrow and hoping next Friday she'll be able to start her 6 day round again.

From Grandma Mary Ann:
-The last few days have been so hard on Julia. She's such a trooper. Her face is still really swollen today. She tried to eat a bite of pancake, but her mouth is so swollen, it didn't go well. But, she's still drinking sweet tea from McDonalds. Please pray for her white cells to start coming up so she can fight the infection. She's on different types of antibiotics, but the doctor said it is hard for them to work while her ANC is 0. Also pray that she will be able to eat soon so she can stay strong. Thank you for your continued prayers.

From Grandpa David:
-Just got home been a busy day at hospital today. I got there early so I could spend sometime with Julia, she was glad to get her tea. Her jaw is still swollen and still hurting she is now talking but not eating. She wanted to go to the play area but had to wait till it was closed and cleaned She was upset because she had to wait. She just wanted out of her room , but had to wait. I carried her to the play area at 12:00 so she could play she was happy to finally get to be there. I received a call From Jamie that her and Jaron were there so I met with them and we went to meetings with Drs he had several test to get ready for his spine surgery. Please keep him in your prayers also his surgery date is Nov.19th. While he was waiting to have some of his tests I went and checked on Julia she wanted me to rock her so I did and let Mom and Dad go take a break. While I was Carol went and got him and Myah and kept them till we got home. When we were leaving I stopped and told Juls that I loved her and she actually came back with I love you to Paw Paw and good buy, it was good to hear but sad to see the look on her face. Please to continue to pray that Julia's white blood cells return and that her fever stops coming back and that her mouth heals so she can eat again, Dear Lord give Rachel and Richie strength they have not been getting much sleep.

Rough day - countdown to scans 19 days!

Specific prayer request of the day: Pray for Julia's cheek to heal, her doctors to know the right way to control her fevers and for her counts to go up!

From Momma:
-Her fever is really high.
Good news is the giant cheek looks good from drs stand point. Doesn't look like fungal infection but a giant sore from possibly biting it. We still need to find out what's causing fevers. Shes had a very long rough day
 -Pray for Juls her cheek has continued to grow and is the size of a baseball. She is going into the o.r soon to do biopsy and possibly surgery depending on what they find.
They don't think this is just mouth sores or thrush.
They said this is very complex

From Grandpa David:
-Been with Julia all day and just got home. It has been a roller coaster of a day.
Got there this morning to find her cheek was at least twice the size it was yesterday.Julia only wanted to be held she was feeling so bad. The doctors came in for rounds and they expressed concern about her jaw as well. They upped her morphine to make her more comfortable and it didn't take long and we could tell it was helping. More doctors came in to check her jaw and nose and she got so upset with them touching her she had a melt down. After a while of calming her down she worked with the Doctor to let her check her out. They sent us down for a CT scan and after that things were leaning toward a fungal infection. More doctors were called in they needed to see inside her mouth but she just couldn't do it. By this time they were really suspecting fungal infection which would have been a 30 day stay with super antibiotics. We took her to OR so they could put her out and do their tests , they had a group of drs ready to work on her they checked inside her mouth, checked her teeth, checked nose . They found she had bitten the inside of her cheek and now they believe the swelling is from that. Not fungal Infection Thank God for that.
Her fever spiked back up this afternoon at one time it was 104. Now they have to try and figure out what is causing fever to keep jumping like this. I got to carry her to her CT scan and back and sat down to rock her in chair I stopped rocking for just a min she said don't stop rocking Paw Paw, I rocked her for 3 hours. held her so tight. Dear Lord please give the drs. the tools and ability to find what is causing Julia's problems that she can receive the med. to heal her and make her well again. Juls finally agreed to let me leave but I have to be back early in the morning with 2 sweet teas I told her give me a thumbs up and I would so she gave me the big thumbs up told her I would see her in the morning.

Painful day of fevers, countdown to scans: 20

Specific prayer request of the day: Please be in prayer for her pain and sores to subside and for her Her ANC to skyrocket! Pray the Lord strengthens her.

From Momma:
-Today Juls fever was around 102.7 highest yet. Poor thing has mouth sores and possibly thrush along with the neuropathy jaw pain. The morphine is really helping. Praise the Lord!!! She hasn't eaten in 4 days but she is drinking sweet tea.
This may take awhile to get over but I know one thing that makes her so happy, Kevin Sullivan he's her very best friend!!!
Please be in prayer for her pain and sores to subside. Her ANC to sky rocket! And for the Lord to strengthen her. It stinks seeing her like this but I know as I hold her hand my God is holding both of us! Only 20 more days until her scans!

From Grandpa David:
-Praying harder for Miss Julia she is having a really hard time. Her poor Jaws are so swollen and Jaws hurt so much she can barely talk. They Have started her on a Morphine drip to help with her pain. She drank a little sweet tea but not much she hasn't eaten in a couple of days. Today there were no smiles from our little angel. Her ANC white blood count is still 0 and her fever keeps going and down every time it hits 101 then they have to start her cultures all over again. It doesn't look like they will be coming home for a few more days at best. She is suppose to have another round of Vincristine chemo Friday ,but I think they will be canceling it. It was heartbreaking to see Juls like this I got on my knees next to her bed and tried to hold her hand ,but she didn't want to be touched. I left early to be back to get bigger kids from school told my Angel I would be back in the morning for her with another sweet tea. Please keep Julia in your prayers tonight ask the Lord to help relieve her pain and raise her counts back up if her counts come back up that will help her body fight other infections. Pray for Rachel and Richie as they have to sit and watch their baby girl laying there in so much pain give them strength and comfort. I pray for a restful night for all them. Love Paw Paw Dave.

From Grandma Mary Ann:
-Just got home from visiting Julia today. Paw Paw Dave and Pastor Kevin also visited her. She had a very bad day. White cells still at zero and running a pretty high fever off and on. Both of her little cheeks look like she has golf balls in her mouth, they are so swollen. The doctors came in and wanted to look in her mouth. She could hardly move her jaws, but she's such a good girl, even though it hurt her so badly, she did what they asked her to do. She's on a morphine drip, and it must be helping because I talked to Richie a little bit ago, and she was feeling well enough to go to the Ronald McDonald floor and to the cafeteria. I pray that God please help her through this very hard time and that He also be with Rachel and Richie. All three of them are amazing. Again, thank you for your prayers and support. God Bless.

Praying for Hazel and Juls

Specific prayer request of the day: Pray for Hazel, another little girl in the hospital suffering from liver failure. Pray for healing for her and strength for her family.
Pray for Juls that the pain eases and her counts go up. Keep the future for all kids with cancer in your prayers, that it is bright and full of love.

From Momma:
-Juls is running a fever again and still has no white blood cells. Looks like we may be here a few more days. She's in some pain from her vincristine she had Friday. Her jaws hurt to talk or eat but she is eating. She has some sores but not in her mouth. So overall better then it could be but still not great by any means.
Please continue to lift her up. She is so strong and such a trooper. Only 21 days until her scans! So be praying and expecting a miracle. God's faithful!!!
-Juls is doing ok. Still no ANC and low blood count so possibly another transfusion.
But what I really ask you to pray for is hazel a little girl who's liver is shutting down due to complications. There's not much drs can do but wait and see if the liver starts healing itself or shuts down.
Please, please pray for hazel.
Facebook page: Hope For Hazel

From Grandpa David:
-Rough evening tonight didn't see Julia today and she's been heavy on my heart received call from Rachel Julia's fever went back up this afternoon and they had to do her cultures over again. Her white blood count is still at 0 also she is in a lot of pain from the Kristine chemo her Jaws hurt so much that she isn't able to open them and eat. She did manage to drink a sweet tea through a straw. Wish I could trade places with her and take her pain. I was at the store today but could only think about her so tomorrow I will be closed and will be going to the hospital. Please keep lifting our Angel up to the Lord because through him all things are possible. Pray her counts begin to come back up and her fever leaves and stays gone. Take her Jaw pain away Lord that she can eat and smile again because of the pain we have lost her Beautiful smile and Laughter. I ask these things in Jesus name. Amen.

From Grandma Mary Ann:
-Visited Julia today. She's still not feeling well and her fever went up again this afternoon. She did get to leave her room for awhile, though. She went to the play room, Ronald McDonald floor, and the cafeteria. When I told her I had to leave, she said please don't go Grandma - not yet. So I stayed for awhile longer. She still didn't want me to leave, but she finally gave me a little smile and several kisses and waved bye to me. Breaks my heart to leave her. Please pray that her fever subsides, that her counts come up, and her jaw pain goes away. Thank you and God Bless.

A prayer from Suzy:

"Thinking of our camo princess as the evening winds down. You've been on my mind all day pretty girl. Love you and miss you and I'm so thankful that God brought us all together! You are a true inspiration and testimony to Gods amazing work! Sleep good precious and I'm praying for God to give you relief from the pain and that He will bring up your counts and take your fever away so you can show all of us that beautiful smile again soon from home! I'm also praying for your momma and daddy and all the family to be able to rest and have relief from the heartache they have every time you are not feeling well. Keep fighting, we are all behind you and love you so much."

Zero counts, but counting the smiles instead!

From Momma:
-Juls is all smiles she received a gift from Debbie Biere Diestelkamp and loves it
-Juls ANC is still 0 and still has a fever but she also has a few smiles.

From Grandma Mary Ann:
-Just got home from the hospital. Julia was not feeling as well as she has been, but still managed to give a little smile. Her jaws were hurting, but the nurse gave her some medicine that hopefully will help. I pray that her ANC will come up soon and she soon will be feeling better. Praise God for all He has done!

As always, thank everyone for the prayers.

From Grandpa David

-Took the kids down to see Julia, really Paw Paw was missing his girl. Julia was sleeping when we got there so we talked with Grandma Mary Ann, Rachel and Richie for a little bit. Ahna was laying in bed when she saw me her arms went straight up hold me. I was sitting on corner bench with Ahna and was talking and Juls woke up blinked her eyes a couple of times heard my voice raised her head looked over the rail like is that really you. I got up and went over to her laid next to her held her hand and got a smile even as bad as she felt I got a little smile. Her ANC  counts are still bottomed out and her jaw is hurting from the Kristine chemo she had Friday. She's not eating, hurts to open her mouth she is drinking a little ,but not a lot. Her fever was just under a 100 this afternoon. She seemed to be getting tired so the big kids came in again and told her goodbye and we came back home. Thank you to everyone for all their continued prayers for Julia we need each and every one. Praise the Lord for all that He has done and all that He is about to do for Julia and all the other sick children.

11/2 - Fever and low counts

From Momma:
-Sweet Juls has an ANC of 0 and will be getting a transfusion tonight. She seems to have mild cold symptoms. We will be in the hospital until counts go up and fever goes down.
Today was hard for me.....just a reality check
Please pray for her

Debbie's boys showing off their Tough Poses!

From Grandpa David:
-Julia had to be admitted this evening her ANC counts are at zero. Pray that they come back quickly and that her fever goes away. Praying she gets better soon and gets to come home.

-Julia's fever is back and they are on their way back to Children's her fever is jumping all around so they didn't want to wait any longer and are headed in with her now. Prayers for Julia and Rachel and Richie, praying they get it stable and get her back home soon!!

Debbie's boys showing off their Tough Poses!

 

From Grandma Mary Ann:
-Praying that the Lord continues to hold our precious Julia in His arms and to keep her safe and praying that He be with Richie and Rachel to give them strength. Amen
Thank so much to everyone for your prayers.

11/1 - Cycle 2, Round 3 DONE!

From Momma:
-So Juls 6th round of chemo went well! She got blood this morning along with her chemo. She isn't eating much only a little Chinese!
Things seem ok.
Pray that her fever doesn't rise and her counts do rise!
I see lots of people posting what they are thankful for today. I must say I'm so thankful for a loving God who shined His grace down on Julia. I'm so thank for all my 5 kids! I'm thankful that the Lord watches over them. I'm so THANKFUL that the Lord has given me peace in this time of darkness!!
Julia's scans are Nov 25th so please please be in prayer over these scans. I believe her cancer is gone.

From Grandpa David:
-Juls got up this morning and got ready to go to hospital for her transfusion and her treatment. She wasn't to happy when I picked up the kids for school. Her treatment went well and she was able to return home. She is now running a low grade fever 99 hopefully it will stay down. Julia and mommy and Ahna were playing puppy dogs. Praying her fever stays down and that her numbers start coming back up. Seeing her smiling face at home with all her family together is truly a blessing Thank You Lord!!!

Josh is working hard on the Blizzard Bash car, still looking for sponsors too!

 

10/31 - Halloween with the Stones

 














From Grandpa David:
-Got to Rachel's this morning to find a Cowboy and a cowgirl and a princess waiting for me. Juls was putting on her Spiderman outfit. Juls had her nurse coming this morning so we couldn't go on our McDonalds date, so I did the next best thing I brought it to her. She was excited when she saw her pancakes, but said Paw Paw where's the syrup?? I said, "Wait a min. girl there's another bag," and showed her the syrup she said, "I thought you'd forgot." A little while ago we had someone knocking at the door at we had a Carebear standing there with her brother and sisters. I had the coffee table all ready for them lined up with goodies. Mom said it was time to go Aly and Juls came running up and gave me a big hug about knocked me out of my chair Juls says I wanna do that again. Anytime I'll take all the hugs. I hope everyone had a safe Halloween evening. Tomorrow Julia will be getting a transfusion and more chemo. Her counts are starting to come down and her tongue is looking like the blisters maybe starting to return. I'm praying they don't, but other then that she's happy and laughing like her normal self. Dear Lord be with them as they travel back and fourth to the hospital tomorrow watch over them and keep them safe!!!!

10/30 - Cones, counts and chemo

From Momma:
-Juls seems to be doing ok we will find out about her blood counts tomorrow and chemo again on Friday
The problem seems to be behavioral. She having lots of outbursts which include screaming, biting, kicking, punching! They are a lot like the one she had when she had neurotoxicity! I'm very concerned and am going to call her doctor tomorrow. Anyone who knows Juls knows that this is not like her at all. Anything and everything sets her off.
Pray this resides quickly and we can have Juls back!!
Pray for her counts as they are falling pray they don't bottom out. Pray for her as she gets her next round Friday.

From Grandpa David:
-I woke up Julia this morning and let her know it was time for our date to McDonalds. She looked up at me and grinned. I helped get her dressed. Jamie and Myah said they wanted to go to. So Mommy and Ahana came together and Juls rode with me we had to hurry and beat everyone there. She didn't eat hardly anything but she wanted a dipped cone I asked McDonalds worker if he could fix her a kiddie cone and dip it because I knew she wouldn't eat much and he was nice and did it for me. When it was time to go she was ready for Mommy again. She went and visited Grandma Mary Ann for a while. I brought bigger kids home from school and Juls wanted to play. She has a pogo stick and I had to help her ride it she wore me out. Told her Daddy would have to play with her when he got home. Told her I would see her in the morning, I am so thankful getting to spend this time with her.